Find out what’s made me tick for the last 75 years – my autobiography is finally finished

Hi everyone and Merry Christmas:

After 2 ½ years of work, I can’t quite believe that I’ve finished my autobiography, CMT and Me: an intimate 75-year journey of love, loss and refusal to surrender to a disabling disease and that it’s up and out there.  It took so long because I had almost 55 years of journals dating back to 1963 to go through, 103 CMT Newsletters to revisit and thousands of photographs and negatives from family members dating back to the late 1800s to view in order to illustrate the book properly.  I not only write about my CMT but my life as a woman trying to find love and happiness and make a difference in the world because isn’t that what we all want, CMT or not?

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In 330 pages, I bring to life my family and then what it was like for me to grow up in the 1940s coping with CMT.  No one knew why I was losing my ability to walk like everyone else, why I couldn’t stand still, why I couldn’t run or climb steps. Even when I was diagnosed to CMT there wasn’t much anyone could do about it until surgery was suggested. But that’s just a tiny bit of the roller coaster ride that I’ve been on for the last 75 years.  Going to school in a strange city, trying to find a job, getting married and learning about alcoholism, divorce, depression, designing a home, finding love and connecting with thousands of people with CMT around the world are just part of my story.

More than 200 photographs and graphics illustrate the 35 chapters of the book and there is a resource section that includes symptoms that can be part of CMT.

The paperback is available on and for people using e-readers it is also available on Kindle and Kobo. The ereader version has fewer photos but the text is identical.

I’ve included a small graphic here (above) about the book and ask that you please send it on to anyone you know who has CMT or to those you love. It might help those who don’t have CMT understand what CMT is and how it can affect people. And, if you do read the book, would you kindly leave a review wherever you bought it, especially if you liked it.  And I’d love your feedback as well. It’s not easy to throw your deepest feelings out to the world, but I thought to myself as I was writing, if I don’t tell the truth, I’m not going to connect with the people that I want to connect with and I’m not going to help anyone see that they’re not alone as they cope with their CMT.  I hope you find my life as interesting as I have living it.

From our cozy Canadian den in the trees, I wish you all a very happy Christmas and let’s hope 2018 is a good one.

Until next time,