How can your expertise and fast fingers help CMT research?

Now that my autobiography, CMT and Me, is finished and online on Amazon for sale, I thought I’d like to go through the CMT Newsletters and pick out the best stories, arrange them in a book and put them up for people to read about others with CMT who coped so beautifully, or not, throughout their lives.

These stories are from people all over the world and they made the newsletters, they gave it a heart. The people who wrote them were candid and open, their stories were sometimes funny and sometimes sad but they touched us in a way that nothing else could because they always came from the heart.

The storytellers had different types of CMT but most didn’t know what type they had at the time because testing simply wasn’t available and it was very rare back then to be tested.

To get this project really moving, I need to know whether any of you are on a Mac computer and have ever found optical character recognition (OCR) software for it, meaning that if I used it, I could scan a page of the newsletter on my Canon scanner and then manipulate the text on my computer so that I don’t have to retype or dictate the articles into my word processing software. The local stationery store sent me some leads for free optical character recognition software but most of it is so technical, it is beyond me. If any of you do use OCR software on a Mac computer could you please get in touch with me?

And, if any of you can type without pain and would like to type some of the stories for the book, I can send scanned pages to you and you can simply put it up on your computer beside a blank Microsoft Word page and just type what you see.  You can then save it and send it to me on email.  Or, if you have speech recognition software built into your Mac or PC, you could use that as the results would be the same. Fifteen of us typing or speaking 20 stories each over the next few months will see the book done in no time

I have already begun this new venture and I would like half of the proceeds to go for CMT research. I don’t know if you know that Amazon takes 60% of the purchase price of a book and there are also taxes to be paid on sales. I’m still not certain how it all works but I will learn as the year goes on and CMT and Me sells.  I’d also like to get it done within a year if we can do it.

This project will bring back the stories of a lot of the people who have since died knowing very little about their CMT. It will also bring back memories to some of the older people, like myself, who still remember the wonderfully personal articles that were in the CMT Newsletter over the 18 years that we published. I think this is worth doing and it’s worth doing well.

I look forward to hearing from any of you who are familiar with optical character recognition software or can volunteer some of your time to type or speak articles. I can no longer type but thanks to speech recognition software, I can speak at least one article a day into my computer. If your computer has the capability, you could do that as well.

I venture to say that there are probably at least 300 or more good stories in those newsletters that could make a difference in the lives of people with CMT, if we can get them out there.  I’m hoping that we can pull together on this.

I don’t think it’s too late to wish you a very happy new year and I look forward to hearing from you.

Until later,


CMT and Me is now available in paperback on, and on Kobo, Kindle,  and iBooks plus many other distribution channels for ebook users.

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