My maiden voyage on medical marijuana a rough ride

Just before Christmas I decided to try the medical marijuana butter I’d been saving in the fridge. It was all legal and I was hurting. Rather than write about it here, I’ll send you to the local paper and my latest Access Niagara column. I wrote about it there and the feedback has been enlightening. [...]

A KOBO is a neat Christmas gift idea for CMTers

About a month ago I was sitting in my doctor’s office waiting for them to call me and I struck up a conversation with the woman next to me who was reading an electronic book. She showed me some of its features and let me hold it. It was surprisingly light. I thought it was [...]

Short breaks from pain – a new drug

To say I respect and try to avoid the use of drugs is an understatement. I’ve got a sleeping aid prescribed in 2001 that I still haven’t finished. I only take it when things are so bad I’m crying for lack of sleep. I save it, I cherish it because it works when nothing else [...]

CMT and contemplating the inevitable

My dear husband, Ron, 74, experienced a major plumbing malfunction a couple of weekends ago. I know, I know, that’s kind of a private topic. But when he’s down and out, not only does it affect him, but my entire life changes. Ron does so much for me, and around the house, that it’s a [...]

New Canadian CMT forum launched

Today, the new CMTCAN forum on yahoo groups was opened to the public. My reasoning for doing this was not to make more work for myself but to help Canadians share information about CMT and what help is available to us in this country. We have provincial health insurance that pays for some things, the [...]

CMT and voice problems

Night falls before 5 p.m. It’s the shortest day of the year. From here on the days get longer a few seconds at a time and winter winds its way through our lives and minds once again. We’ve already experienced a great deal of cold here in Southern Ontario and the world has been white [...]

A rewarding November…so far.

A singular crow caws through the bare tree-lined alley that is our street. It’s 7:43 in the morning and I’m waiting for the nurse to come from the lab to take a fasting blood sample. I’ve been awake since 5 and Ron woke up around 3 when a smashing great thunderstorm passed through the Niagara [...]

The colours of hope

Yesterday’s post certainly got a reaction but that wasn’t why I wrote it. I wrote it because that’s how I felt at the time and it wasn’t good. I thank you very much for sharing with me and, please, continue to do so. Hearing from others in the same rocky boat made me feel as [...]

Sisters in CMT

So alike, so far apart: sisters in CMT. As soon as Iveta came through the door, I knew we were kindred souls. I noticed the unsteady walk right away. The crutch on her left side told me there was likely a balance problem so common with people who have CMT. She smiled and her huge [...]

Thoughts on coping with CMT pain

Last Saturday I went to a chronic pain support group meeting that was more a they- tell-us than a we-tell-them but it served its purpose. I didn’t stay for the entire meeting because it began an hour late and the room was freezing cold for me. I soon lose vitality in a cold room and [...]